How am I?

How am I?

There’s a simple answer – worried, anxious and fatigued. But that’s far too simple an answer, as I’m also hopeful, grateful and optimistic. I feel as if I’m swinging between these two extremes very easily at the moment. Having cancer, and caring for someone with cancer at the same time, is confusing. Nothing I’ve experienced before has prepared me for this.

All of our family and friends have been hugely supportive during the last few months. Thank you to everyone for all that you’ve done for us so far. Jane’s been home a week and the house is filled with flowers. Surgery was successful and her response to chemotherapy has been amazing. The best her surgeon has seen for someone in her condition, so he said.

I'm rapidly becoming an expert at flower arranging
I’m rapidly becoming an expert at flower arranging

The day before Jane went in for surgery I had a one year checkup following my stem cell transplant. That news is really positive too – my consultant thinks there’s a 60% chance that I’ll still be in remission in six or seven years. The pessimist in me whispers that there’s a 40% chance I won’t be, but I’m going to ignore that voice for the moment.

All of these things make me hopeful, grateful and optimistic.

The worries, anxiety and fatigue feel just as real though. All things being equal, I’m a few years away from retirement. I enjoy work. Software AG is a great company, my colleagues are good to be around and I love working with our customers and potential customers. But given how unpredictable our prognoses may be, perhaps it’s selfish to carry on. Maybe I should retire early and focus on making other memories instead. Perhaps there’s a middle way and I can do both. I hope so, but what if I do the wrong thing, make the wrong decision? I don’t want (for example) finance to become a problem if we both continue to defy the odds. And I want us to continue to defy the odds and believe that we will! The Bastard Beastâ„¢ isn’t going to push us around.

So I have no answer as to the future at the moment and that’s what I’m finding exhausting, both physically and psychologically. I’m not going to rush into making changes. Jane is an equal partner in my decision making and she needs much more time to recover. I thought that having a stem cell transplant was pretty tough, but it is nothing in comparison to being treated for ovarian cancer.

In praise of Vueling

A few days before Jane was diagnosed with ovarian cancer, we’d booked a holiday in Barcelona. It’s somewhere neither of us has been. It was meant to be a sign that things were getting back to normal after my stem cell transplant last year …

Treatment obviously means that this trip has been postponed. Fortunately, we’d only booked the flights and hotel. The hotel was easy enough to cancel as we’d opted for a flexible booking (at the Catalonia Magdalenes, if you’re interested). The flights – non-refundable – looked as if they were going to be more tricky. We both have holiday insurance, but through different companies.

The flights were booked with Vueling, so I called their customer service desk to ask for a cancellation invoice. The call was answered promptly and I was offered the invoice, rescheduled flights or a full refund. The customer service advisor I spoke to was empathetic and helpful and I gratefully accepted the refund. All Vueling required was an emailed “fit note” and proof of our kinship. My credit card was refunded within 48 hours of these being provided.

Good customer service does exist, even on low-cost carriers, and Vueling now has two more customers for life.

Barcelona travel guides

I also needed to cancel arrangements for a weekend touring in Wales with the Seven at the same time. One of the hotels (a small, privately-run affair near the base of the Cader Idris) I’d booked was non-refundable. I emailed them to explain and hoped that the notice I’d given would enable them to sell the room to someone else. It’s tough being a small business owner and I thought this might be rather more useful to them than simply being a no-show. I said I understood that my booking didn’t allow refunds and that I didn’t expect one. Sadly, I never received even an acknowledgement of my cancellation from the hotel.

Say Bollocks to Cancer and Bollocks to Brexit

Join me, my family and friends and say Bollocks to Cancer.

Also please use your vote tomorrow to say Bollocks to Brexit.

Vote Liberal Democrat to say Bollocks to Brexit

The two requests are connected. The development of novel cancer therapies relies on close European and international co-operation. The vacuum left by a mad no-deal Brexit that Farage, half the Tory cabinet and their elitist chums want will kill the sick.

So vote for a genuinely pro-remain party. I recommend supporting the Liberal Democrats as they have the best chance of frustrating the Brexiters, but whatever. Just vote. Defeat the unpatriotic nationalist elites. And tell your family, friends and neighbours to do the same.

This is no time for our great country to become the twenty-first century equivalent of the GDR, isolated and poorer in an increasingly dangerous world.

A pants way of raising ovarian cancer awareness

Today is world ovarian cancer awareness day. This cancer is the 6th most common to affect women – currently around 33,000 in the UK have it.

7,400 more women are diagnosed with this cancer each year. My wife’s diagnosis was in April.

It can strike at any age, but more than 80% of patients are 50 or older. The next highest risk factor after age is a family history of the cancer.

The four most common symptoms are bloating, loss of appetite, stomach pains and an increased need to urinate. These symptoms are often mistaken for irritable bowel syndrome, but a blood test for high levels of a protein known as CA125 can indicate cancer. Ask your GP to perform this test if you’re worried, as early diagnosis helps.

More information and help is available from Target Ovarian Cancer and Ovarian Cancer Action.

Our Australian neighbours seem to have a pants way of raising awareness though …